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Take a look. SEGMENT:E3

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S4 "Autobiography of a Face''

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Lucy Grealy is here.

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She has an extraordinary story.

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It has been told in two places of importance: First, to note

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that she is an award-winning poet, and now she will probably

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be an award-winning writer.

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She won a National Magazine Award for a piece in Harper's

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magazine calling ``Mirrorings: To Gaze upon My Reconstructed

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Face.[sp?

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] '' She has a book called Autobiography of a Face, and I

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am very very pleased to have her on this broadcast.

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Welcome.

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LUCY GREALY, Poet/Author: Thank you.

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Thank you for coming.

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Thank you very much.

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Tell me about when you were 9 and, and what

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you remember about that time, to begin with.

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I remember it quite clearly.

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I had-- I came down with a toothache.

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I got knocked at school playing on the playground, and I thought

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it was a toothache, and the next day, it was all swollen so my

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mother took me to the doctor.

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And after a very long, you know, weeks and weeks of misdiagnoses

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and different doctors, it was discovered I had this very rare

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form of cancer called Ewing sarcoma [sp?

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Mm-hm.

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And from there, they removed about a third,

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almost half, of my jaw on the right side, and then I went on

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to have two and a half years of chemotherapy, several years of

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radiation, and many-- numerous, numerous, numerous

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reconstructive operations that ended-- CHARLIE ROSE: Some 30,

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as I remember.

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Something like that.

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I sort of lost track somewhere along the way.

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What's extraordinary about it is how

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you came to view yourself.

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Mm-hm.

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I mean, this is a book not just about what you

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just talked about -- chemotherapy and, and, and

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reconstructive surgery -- it is about pain; it is about

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self-esteem; it is about image-- LUCY GREALY: I think

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ultimately-- CHARLIE ROSE: --it is about what else?

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--it's a book about identity and forming your

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identity, your, your idea of who you are, how you act in the

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world, you know, and the innate sense we have of who we are and

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then that somewhat less innate, more mysterious, sense of who we

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are-- where our borders meet other people's borders, and how

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other people perceive us, and how we perceive them perceiving

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us.

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I think it's really a book about being looked at and being seen

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and seeing yourself, both through your own eyes, other

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people's eyes, and learning to tell the difference between

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those two sets of eyes.

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How did it change for you?

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How did it change?

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Very slowly and gradually.

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There was no one moment of revelation, where I thought,

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``Hallelujah!

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I'm cured.'' CHARLIE ROSE: ``Cured'' meaning accepting

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yourself.

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Yeah, exactly.

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And, and, and-- LUCY GREALY: It's funny.

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I, I say in the book, you know, I, I had cancer.

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I had this horrific physical thing happen to me-- CHARLIE

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Right.

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--with the, you know, the story is about looking

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different.

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Yeah.

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You know, it was the emotional trauma, and there,

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there was no moment when I sort of overcame that, where I, I saw

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the blinding light.

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It was more that all along I had, I possessed the capability

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to have moments of understanding and I guess you could call them

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transcendence -- moments of joy versus many moments of sorrow.

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And it's really more a case that over the years, I've learned to

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exchange the balance so that now I have more moments of joy and--

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with less moments of sorrow.

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Let me go back to-- I mean, this is a quote

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from you.

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``When I thought of beauty, I thought of acceptance in walking

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through the world and through a room with grace and fluency that

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I couldn't imagine, and I wanted to be beautiful.

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At least, that's what I thought.

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What I really wanted to do was to walk through a room with

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grace and fluency, and it took me an incredibly long time to

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realize that I could do that, that that's what I wanted and

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that's what I had to go after.

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And a lot of women who want to be beautiful, what they really

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want to be is loved and accepted, you know, and there

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really is a distinction between the two things.'' LUCY GREALY:

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Beauty is, you know, it's a word of a few letters that really is

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a label for all those other things.

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And we mistakenly identify it as being equal to all those things

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that you just listed -- just, ease of being, grace and

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fluency.

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We forget that so we, we go after beauty.

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It's just-- you know, you could take this same dynamic and apply

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it to money, you know, wealth, you know.

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Really what you-- ``we'' meaning, using the universal

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``we'' here -- you want that sense of belonging and

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acceptance and security, and you somehow think that, that wealth

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will give that to you.

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It will give you many things, but it doesn't necessarily give

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you those things.

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They're, they're independent, and wealth and beauty are

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separate.

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They're labels that those other things exist in the category of.

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Yeah.

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This is an easy shot, but is it-- who determines beauty, do

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you think?

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It's-- that's not an easy shot at all.

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I don't know why you would think it was an easy shot.

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Well, I'll tell you why.

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Because a lot of people will say-- you know, want to say--

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it's easy to just say, ``Well, the problem in America is that

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we hold up -- the media -- holds up--' LUCY GREALY: Mm-hm.

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``--holds up this -- some kind of ideal as to what

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beauty means.

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And if you don't fit that definition of beauty, then

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you're ugly.'' LUCY GREALY: Uh-huh.

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``You're not beautiful.'' You know, some

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arbitrarily determined-- and that therefore, that's the

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problem, many people will say, is that you have to be slim; you

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have to be-- LUCY GREALY: It, it's-- CHARLIE ROSE:

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--beautiful; you have to be all this stuff that creates

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enormous, enormous problems of self-esteem.

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It, it's definitely part of the problem,

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but it's also more-- it's like a common language or a rhetoric

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that we all use to talk about, ``Well, this is how should be,''

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and we forget that things really exist in dialogue, you know, and

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if somebody says it should be this way, then there are going

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to be an equal number, if not more people saying, ``Well, no.

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Actually, maybe it should be this way.'' And it's far too

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easy to say that the media, the fashion industry-- CHARLIE

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Right, right.

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--the [unintelligible] are the enemy.

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And that, that subjugates women into this like pathetic, you

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know- CHARLIE ROSE: Right.

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--role of the-- CHARLIE ROSE: Victimization of

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women.

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--victim.

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And it's really not true.

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Also, a lot of people really want me to say, ``You know, it's

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not important.

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It's not-- beauty and this ideal, you know -- slim,

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whatever -- it's not ideal.'' That's entirely not true.

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It's very important.

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The truth lies somewhere in between.

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It's very important and it's utterly irrelevant at the same

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time.

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They're both paradoxically true at the same time, and it, it's

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much more a very personal journey.

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I could never claim that this-- that I want to start some kind

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of a revolution.

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It's amazing how people want to put that onto me, and it's just

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not true.

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It-- this is a very personal journey of finding your own

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meaning, you know, in contrast and, and coming into conflict

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with all these ideals.

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In my particular case, I think the reason people are attracted

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to my story is it's almost mythic.

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You know, what happened to me is I had the, the one thing that we

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just all take for granted, which is, you know, our basic sense of

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identity, wrested away from me.

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And the, the things I went through were so sort of blown

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out of proportion that I was allowed to, you know, in a

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strange way, see past them.

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But I think the, the story is actually applicable to any, any

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thing that comes along and tries to tell you, ``This is how

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reality works.

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This is how you work.

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This is how you work in relation to reality.'' And so many things

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don't offer us the space in which to just say, ``No, wait a

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minute.'' We don't even necessarily have to know exactly

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what the answer to the no is, but just the act of saying,

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``No.

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I, I have a reservation about this.

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It might actually be something else,'' is an enormous step,

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which very few people feel allowed to make, mostly because

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they don't have the language to do it.

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They don't possess the language of rhetoric in order to

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recognize when people are telling them something that's a

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label, like ``beautiful'' or ``ugly.'' Those are labels;

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they're not actual things.

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Let me go back to the chemotherapy.

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It's, it's painful just to read what you went through.

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It is.

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I kno-- it's funny.

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Chekhov, when he wrote the-- I think it was The Seagull--

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Yes.

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--baffled everybody -- this is like this,

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you know, tsarist drawing room drama in which everybody thinks

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about killing themselves all the time -- he baffled everybody by

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saying, ``It's a comedy,'' you know.

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And nobody really quite understood what he meant, and I

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never really understood until I wrote this book.

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And what happened to me was a life, and what I did is I took

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that life and I put into a book.

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A book didn't happen to me.

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My life happened to me.

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And thing was, is that when you read a book, it, it becomes

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representational of that life, which is very easy when you're

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reading somebody else's book.

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But as I was reading my own book, which was an abstraction

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of my own life, I began to see the absurdity of, of the entire

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situation, really.

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The-- not even the, the moments when I suffered.

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I suffered genuinely; I'm not discounting that.

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But other people's interpretation of it, I ha-- you

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know, I, I've been on all these talk shows and people describe

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my life back to me and to the camera in the most tragic terms,

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and I just want to giggle the entire time.

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Well, but do you giggle when you stood outside in

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the cold trying to get pneumonia because you didn't want to--

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Oh, no.

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I-- CHARLIE ROSE: You don't giggle when you say that, do

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you?

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I didn't giggle then.

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You don't giggle when all the things you did to

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yourself and to your body in order to get sick so you

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wouldn't have to take chemotherapy.

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No.

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I, I don't giggle about those things, but it, it's

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interesting, again, because it's, it's a book and then this

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is an-- CHARLIE ROSE: Right.

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--interview about the book, and it all becomes

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very abstract, which is very dangerous, too.

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It's very helpful and I think in some ways true for me to have

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that distance about it, and it's also very dangerous-- CHARLIE

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Yeah.

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--if I tried to get it at the time.

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Okay, but I mean, we have to deal with your life,

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and this book-- LUCY GREALY: Uh-huh.

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--is a reflection of your life.

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It is the notion that-- I mean, you somehow your parents

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instilled in you, you had to suffer this in silence.

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Somehow-- LUCY GREALY: Mm-hm.

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--you got that.

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Yeah.

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That was the message you received, wherever

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it came from.

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Yeah.

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You know, you, you don't cry.

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Yeah.

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It, it was very early equated [sp?

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] on to me that silence equals bravery-- CHARLIE ROSE: Yeah.

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--and bravery equals goodness.

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And by being, by enduring chemotherapy, you were

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worthy of love.

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So I thought.

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So you thought.

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Yeah.

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And then when you didn't-- no longer needed

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chemotherapy-- LUCY GREALY: Mm-hm.

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I re-- CHARLIE ROSE: --your mind said to you, your head said

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to you, ``Maybe I'm not doing anything worthy of love''?

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I think it was more that I, I was faced with

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this crisis.

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I know how to-- LUCY GREALY: I, I knew-

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chemotherapy, as horrible as it was, was what gave meaning to my

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life.

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It was the arena in which I was like-- CHARLIE ROSE: It was a

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battle for you-- LUCY GREALY: --trying to-- CHARLIE ROSE:

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--to join, in a sense.

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Yeah.

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And when it was taken from me, you know, as in, when it ended

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-- you know, even the language-- CHARLIE ROSE: Yeah.

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--that I use to say, ``It was taken from me'':

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It, it ended, as it should have and as I'd wanted it to all

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along.

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I was suddenly faced with realizing I was going to miss

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it.

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I was so afraid that I would no longer be special, and that

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nobody would love me because of that, you know, which is a

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little ironic considering what happened next.

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But at the time I, I was so bereft of any identity or sense

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of-- that I could do anything to make anybody love me.

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It, it was a very lonely moment in my life.

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And clearly you found out there were many things

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that were worth loving about you, and you found it in

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sexuality; you found it in a lot of other things in terms of

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relationships and-- LUCY GREALY: Mm-hm CHARLIE ROSE:

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--how you-- mainly how you perceived yourself.

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But you, you think that the feelings of self-doubt you may

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have had came from somewhere other than-- LUCY GREALY:

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Mm-hm.

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--how you looked.

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It took me a long time to figure that one out.

290
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Yeah.

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That was a big one.

292
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Yeah.

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I mean, my, my face was like the thing that was wrong with my

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life.

295
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Obsessed with it.

296
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I was totally obsessed with it, you know.

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It was the thing that I pointed to.

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What's wrong with your life?

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This.

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Face.

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Yeah.

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And as, you know, sort of-- I think, and this may

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sound strange, but in a lot of ways I think I was lucky, and I

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say that only with a great deal of retrospect, because it's,

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it's like everything became so focussed down to it, and at some

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points, I could actually brush it away and recognize that

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actually I existed separate of my face.

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My, my face was alternately the thing that kept me from the rest

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of the world.

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People couldn't know who the real me was, they couldn't

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understand what I was really thinking or feeling, and I, I

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would feel like, if only you knew, if only it weren't for my

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face then everything would be different.

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It was the famous if-then: If only this, then everything else

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would be fine.

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And then other times, I identified so, you know,

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intimately with my face, especially during adolescence,

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you know, I thought, ``I am ugly,'' you know, ``therefore I

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am unlovable.'' When people made fun of me, I thought it was

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their right to do so, and that I just simply had to accept it

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because I'm ugly.

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That was, that became the explanation.

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And now you say what?

324
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Now I say what?

325
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Some days I say I'm ugly; some days I say I'm okay.

326
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You know, which is the way everybody is.

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It took me a long time to understand that my thought

328
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processes -- thought procii [sp?

329
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], whatever the word is -- is actually just like everybody

330
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else's.

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I, I thought it was aberrant because there is something

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physically aberrant about me, or, or was very aberrant for a

333
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long time -- less so now.

334
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Just like realizing that I was like everybody else was the

335
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great -- I don't know.

336
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I hate to use the word ``healer.'' It's so New Agey,

337
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but-- CHARLIE ROSE: Yeah.

338
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New Agey.

339
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Right, right, I agree.

340
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I agree.

341
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What did people like Elie Wiesel mean to you?

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What did-- LUCY GREALY: I was a big Elie Wiesel fan when I was

343
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in junior high school.

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I used to read a lot of him, Primo Levi [sp?

345
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]-- CHARLIE ROSE: Right.

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--as a way of-- CHARLIE ROSE: Some sense of

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nobility about being alienated.

348
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Yeah.

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I, I thought, you know-- and bec-- I sort of gave up on like

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the junior high school world of boys and cars and makeup and

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malls.

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So I was going to have this deep inner life.

353
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I just, I just decided this one day.

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I'm going to be deep.

355
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And I went about reading and, and I actually learned some

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very, like, true things.

357
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One is that the world that I was living in was really very small,

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you know, like, you know being like, like people who are

359
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well-fed and employed, we like to think that, you know,

360
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everybody else is like that.

361
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And a lot of people immediately around us are, but in terms of

362
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global, you know, events, it's, it's very rare.

363
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We're incredibly fortunate.

364
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And just because we don't often step outside of those

365
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definitions, we don't get to see that.

366
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And I, I used to hear people all the time wishing that they could

367
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have something other than, the lot that they had.

368
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And I would sort of castigate them and think, you know, you

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don't know how good you've got it.

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You know, you-- CHARLIE ROSE: Yeah.

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--you've got clothes, and nobody's like

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beating you over the head with a stick.

373
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Yeah.

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Nobody's like torturing your family in front

375
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of your eyes.

376
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But then somewhere along the line -- I don't really know how

377
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-- I asked the same question of myself.

378
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``Am I doing that?'

379
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' Like, who, who would willingly trade their lot for my lot?

380
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And so I was forced to look outward and realize that in my

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immediate circle, not a lot of people, but in, in a much larger

382
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circle, quite-- CHARLIE ROSE: Yeah.

383
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--a few people.

384
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Yeah.

385
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Autobiography of a Face.

386
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Lucy Grealy, thank you very much.

387
00:15:11,801 --> 00:15:12,801
Thank you.

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Thank you for joining us.

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We look forward to seeing you next time.

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See you then.

